I'm having a really hard night, as you probably already guessed from my post title. I'm in immense pain. My back hurts where I got surgery. The change in weather, temperature, and air pressure has taken a toll on my nervous system. I'm at 8 or 9 level pain on my back. (Some people … Continue reading I’m Having A Hard Night (A Stream of Consciousness Post)
Hi everybody! Here is my most recent post on Love, Geeky Girl. If you enjoyed it, let me know. Also, go subscribe to that blog too! Sam is always putting up great content to read. It’s the holiday season again! With Christmas, Hanukkah, Kwanzaa, St. Nicholas Tag, Saturnalia, Winter Solstice, and Pancha Ganapati all coming … Continue reading Practical Gifts For Your Chronically-Ill Loved Ones *Guest Post* — Love, Geeky Girl
I’m officially a contributing guest writer on Love, Geeky Girl. I will be reblogging the posts on here so my subscribers can read my articles. If you like what you read, go subscribe to Love, Geeky Girl because there is lots of great content on that site as well. Feel free to comment with any topics you want me to write about!
By: Dani Kessel
Hi everyone. My name is Dani. I suffer from Chronic Regional Pain Syndrome, limited mobility, and at least 5 different diagnosable mental illnesses. This affects my daily life resulting in a different normal than those who are ablebodied and neurotypical. I am a spoonie.
Plural noun: spoonies
- Someone suffering from disability and chronic illness/es that can be explained with the spoon theory.
“my sister calls herself a spoonie”
The spoon theory is a metaphor created by Christine Miserandino for the energy and ability limitations that disabled folks live with. The idea is this:
From waking up to falling asleep, every task throughout the day takes a certain number of spoons. Ablebodied, neurotypical folks have a nearly infinite number of spoons, so they don’t have to think about where their spoons go. Disabled folks have a finite number of spoons though…
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[Content Warning: There may be adult content and triggering subjects in this post. Please read with caution if you have triggers related to your mental health or are more sensitive to adult topics.] I'm largely bedridden post-surgery which gives me a lot of time to think, so I am going to write down some of … Continue reading 10 Random Thoughts From My Bed
Hi loyal readers, I wanted to update you on a major life event and the way it will impact my blogging. In less than 12 hours, I will be going into major surgery on my spine. This surgery is going to improve my quality of life, but it will take a while to recover. I'll … Continue reading Surgery and a Leave of Absence
A life of chronic pain. A life of chronic pain means constantly having to cancel plans or explain why I am not enthusiastic being around people. Irritability. With every step, I cringe, blinking back the tears that I am trying to hide. Eight, Nine, Ten level pain. I shut my mouth and lie when people … Continue reading Chronic Pain: A Free-Form Poem
Sitting in my bed tonight, I am hurting. Watching Netflix, I am hurting. Reading a book, I am hurting. Doing my school work, I am hurting. Spending time with my family, I am hurting. Walking. Breathing. Thinking. Functioning in any way, I am hurting. That's the thing about chronic pain, you can never escape it. … Continue reading The Battle Rages On
A year from yesterday, I had my first lumbar sympathetic nerve block. I was terrified but hopeful that it would help. Today, I am going in for my disability impairment rating where they will evaluate my functional and mental disabilities related to my leg injury. This is hard for me to cope with, but I … Continue reading My New Normal